Dec 20th 2016 by brianjayjones • 34 Questions • 88 Points
I had adenocarcinoma in my lacrimal gland and I chose the best option for seeing my young children grow up. I have adapted well and I am using this rubbish year to start an eyepatch business to help others feel confident after surgery or injury.
[Edit] Thank you to everyone for the wonderful comments, hilarious jokes and brilliant ideas. I can't believe how much interest this received and thank you for the gold kind stranger. I've added the example prosthetic I was shown, mine will look younger and be matched to my skin tones, eye colour etc.
Where is Marcia Lucas? Did she get the credit she deserves privately, if not publicly?
Welcome to reddit! If you could tell one thing to every person in the world, what would it be?
What was the give away that something was wrong with your eye? Let's trigger the hypochondria in all of us!
But on a serious note, hope you recover quick. And when you get your prosthesis you should get one freaky looking eye too! For special occasions!
Marcia is (from what I could find out) living in California, a film editor no longer. Does she get the credit she deserves? I think the fans definitely know her accomplishments, and the word is spreading. She had an intuitive sense for both story and for what would satisfy an audience (she told Lucas that if the audience didn't cheer when the Falcon comes back to help Luke at the Death Star, then the film didn't work -- she was also the one who told Lucas the audience needed to see what happened to Indy and Marion AFTER the climax...and hence they went back to shoot the final scene with the two of them on the steps).
And remember: she won one of Star Wars' seven Oscars. Lucas still doesn't have one. That will always be in the record book, even as Lucas tried to expunge her from the official record. J.W. Rinzler, in his Lucasfilm-sanctioned Making Of books actually does a good job making sure Marcia gets the credit she deserves.
I would like to spread awareness about brain tumors. Support the fight against childhood cancer. May is brain tumor awareness month. I'd like for people to support it more especially during that month
I had been getting headaches for a while, my eye started to swell up and I had double and blurred vision. I said at the time it felt like my eye was pushed forwards and it turned out it was. I have put a few pictures on my Facebook to raise awareness.
I'm hoping I can have some coloured eyes made up, match my eye to my outfit!
Hey Gray, I'm a 17 year old battling brain cancer now. Do you have a favorite doctor/nurse that you love talking to? And what advice would you give to me or others who are battling childhood cancer?
What were both of your "Hey, I finally made it in Hollywood" moments?
How easy is to change eyes?
Hard to know for certain, but I doubt it. He turned his back on the Internet and Internet commentary after AOTC. It was too much like PTSD from his days squabbling with Universal and Warner over their 'editorial comments' and what he considered arbitrary editing of AMERICAN GRAFFITI and THX 1138.
Just try not to think about what you have. Let your family or whoever take care of that. Just focus on being a kid. You know who I got that from? M. O. M.
When we did Freaks and Geeks I remember sitting around Seth Rogen and Jason Segel, the four of us was just like, THIS IS IT! WE MADE IT! HOLLYWOOD HERER WE COME! Even though that show was so good, when it first came out a not a lot of people watched it, so we kind of had that moment and it kind of was taken away, and then it was given back to us when it played reruns. - jf
They pop in and out of the silicone that will make up my eyelids, so very easy I imagine
Wait you lost your eyelids too?
There has been some conversation about that. I dont know if or when that could happen, I guess we have to gauge the temperament of the fans to see if its something they want. But maybe. It would be fun to play with all those people again. It would be like if you (JF) did a Freaks and Geeks movie -bc
I had an orbital exenteration, it's the whole contents of the socket removed and the eyelid, due to the position of the tumours
Bryan, has anybody ever told you that your voice is like smooth butter dripped over some like mashed potatoes? I fucking love mashed potatoes.
I was coincidentally just wondering about this on my lunch break, dunno if you're still answering but if you're not maybe someone else can answer even...
Does the vision from that eye go black (or whatever colour it might be) or does it just..... disappear? I don't know how to describe what I mean really.
I love this question, I wondered the same before my op. It was strange, to begin with it was almost white, then static now black. But it's not the same as having both closed when I wink if that makes sense.
Do either of you find it harder or easier to do comedies as compared to dramas?
Will you be getting a bionic eye now?
Well thanks for that question, Sayshoe. Comedy can be tougher because its more fragile. You can ruin a comedy easier than you can ruin a drama. And thats why I say that. A drama is usually very well scripted. A comedy is not fully baked. You are infusing, on a daily basis, opening them up and trying different things. And because of that a comedy is much harder than a drama -bc
That would be nice.
Would you be interested in me writing an erotic fan fiction about your movie?
Was everything, even the prosthesis, covered under insurance for you?
I find it very flattering when one piece of creative evokes erotic fan fiction, or another piece of creative. So why not go for it -bc
I'm in the UK. Big up the NHS. I'd never have been able to afford any of this without them.
Do either of you have a favorite gas station snack? If so, what is it?
My wife was diagnosed and treated for the same condition in 2010. It was quite and ordeal but her recovery is complete. Now living a normal life minus a bit of peripheral vision. Depth perception at short distances was tough at first but you adapt.
Where did you receive your treatment? We are from Canada but travelled to Miami to the Bascom Palmer for specialized treatment.
Good luck with your continued recovery. If you ever want to chat with a fellow survivor PM me and I will pass it along to her.
A slim jim. Its like an old piece of sausage and you chew on it and you're like, oh wow there's a lot of grease in there. And then you realize you just ate a pig snout. Why dont they just come out with pig snout?? -bc
I am from the UK so most of my treatment was London or my local hospitals. Thank you for your kind words and I wish you both the best for the future. It good to hear she has recovered well.
I worked with a guy at Kings and St Thomas hospital on a project about restoring peripheral vision in people who had lost an eye - he was one of the maxillofacial surgeons there. If you are interested, drop me a pm and I'll see if he's still working on it.
I love the director John Hamburg. He does most of those Focker movies, I Love You Man, just great guy. He was acutally my professor at NYU so I knew him a bit. WhenI heard that Bryan was interested, it just seemed like a great opportunity to it. I've been doing comedy with Seth Rogen for a long time, and I've been a fan of Bryan for a long time -- so here was a chance to do comedy with a new crew. - jf
That's amazing thank you.
The main characters for the original Star Wars were pretty much unknowns at the time. How did he go about hiring the actors?
Good morning Gray! Hopefully you're having a good day. What do you feel most proud of?
So all of us one eyed Redditors are planning an uprising, you down?
But seriously, from a fellow eye patch enthusiast, way to channel something terrible into something awesome.
Lucas did it the old-fashioned way: a casting call for pretty much every actor in Hollywood! Then he ran through hundreds of actors/actresses, working all day, every day, for weeks and months on end. He would tape the auditions (something common these days, but not so much back in the early 1970s) and then start putting together combinations of actors to see who looked good together and played off of each other well. For a long time, Lucas considered a rather ambitious cast, with an African American Han Solo (he was prepared to cast Glynn Turman) and Japanese Princess Leia, but abandoned the idea. Harrison Ford, who had been hanging a door at the studio, was asked to read the Han Solo part for other actors auditioning as Luke/Leia to play off of. Eventually, Lucas realized his ideal Solo was right under his nose. Still, eventually, he came down to two casts, one with Christopher Walken as Han Solo, Will Seltzer as Luke, and Terri Nunn as Leia -- against the more familiar cast we know. Lucas found the first cast 'serious,' and the second one 'fun.' He was eventually encouraged to go with his 'fun' cast. Good choice.
Hi! Just the fact that I'm still here and still going. Any time that I'm feeling down and having a bad day, I remember that I'm a brain tumor survivor and that's not by luck. It's a little luck but we've fought hard
James kissed my nose once while filming. I didnt think it was appropriate for you to use tongue in my nose though, James. His tongue darted out and went up my nostril. I didn't say I didn't like it, it was just unusual. -bc
Thank you fellow cyclops
If either of you were marrying off your daughter or son, what would make you question them "why him?"
I'm sorry to hear about your rare cancer! Losing an eye is something I can't relate to, but I'm glad you're able to keep your life and family and press forward to a better, healthier future!
You're very brave to not only endure all of the procedures and share it with Reddit, but can you see why kids love the taste of Cinnamon Toast Crunch?
You just have to observe how they are treated. And the little things, the day-to-day things, thats a big indicator. Is the person being kind? Are they generous in spirit? And thats actually a perfect tie-in to this movie, because my character doesn’t see that in him in his presentation. He’s loud, he’s brash, and because of that I put up the resistance. Stephanie had to say look beyond that. In the movie he witnesses how he treats my daughter with love and kindness, and thats what you have to look for. -bc
Aye, I can half see ...
Mr. Cranston, do you ever see yourself directing a film in the future?
Have you ever used the "I have my eye on you" joke as of yet?
Yes, I do have a script that I wrote that is getting some traction and could possible go next year or the year after that. I'm really excited about it. I directed an episode of a tv series I created call SneakyPete on Amazon -bc
I have so many eye - deas. I can't wait until it's fully healed the pranks will be immense
Hey guys huge fans of both of you! Unbiasedly which of you are funnier?
Real sorry about loosing your eye. I would like to know how long did it take to get you diagnosed from the time you had eye pain and headaches and seen a doctor. What kind of test did the doctors order?
I went to see an optician within about 3 weeks of it being noticeable, I had to chase a bit for the MRI as my referral was lost the first time luckily I had a fantastic g.p. who listened to me and sent me urgently for a scan. The results took 2 weeks and then from there it was so quick. I had a call to say I had to visit a local hospital that day as my scan results were in, they then referred me to a specialist eye hospital that had me in for a needle biopsy, blood tests, chest x ray, CT scan and a debulking operation. Once it came back as cancer I was referred to an oncologist for a full body scan, which took a further two weeks to be confirmed clear, and a MRI of my eyes again. This then showed I still had tumour left behind and due to the very aggressive type the full orbital exenteration was recommended by all my doctors as the best choice.
Were you previously the type to wink at people? How will you address this issue now? Are you worried about people mistaking blinks for winks? Do you notice your nose more now? Oh god now Im dying to know. If you answer any of my questions let it be the nose question...
I think it was our fight. I really enjoyed it. Its complicated, its like a dance. You have to choreograph it. There's something that happens during the fight that wasn't planned. Once James and I were in a certain position... its like 'well, look here'. I bit down on James Franco's crotch. I got a mouth full of Franco. That was the best and worst moment on set -bc
I didn't tend to wink at people but ironically I could only wink with the left eye so I still can but it looks like I am blinking to other people. Feels the same to me though, so does blinking. I really didn't notice my nose more but thanks for pointing that out for me! Haha it doesn't really get in the way though.
For both of you. What is a particular moment on set that comes to mind where you couldn't contain your laughter?
You mentioned earlier you are also missing the eyelid. Do you have a "phantom eyelid"? Does it feel normal? Or do you feel like you can't blink that side?
Griffin plays Bryan's young teenage son, both the character and actor were pretty innocent. On the first day, they just threw him right into it. My character asked him what his favorite swear word was…and he just started coming up with the strangest words, both tame and odd. And then from that moment on, he just went for it...and got dirter.....and dirterrrrr...….dragons and titties. - jf
I do, it's twitched a few times in the past, drives me crazy.
How would Heisenberg deal with James Franco's character in Why Him?
Got any pirate themed eyepatches? Or are all eyepatches pirate themed by default?
Speaking of barrels, he would've rolled out a barrel with some sort of chemical in it. And I would say to him “are you going to be good to her? Are you gonna be a gentlemen? Cause if not I will come after you, and no one will ever find you. -bc
Most other patches I could find were pirate themed which is why I started making a wider variety. I have made an anchor patch for a pirate pantomime though so anything is possible. I make them to order so I can customise them to suit the customer.
Bryan & James, What is your typical morning routine?
Fellow one eye person here. Honestly, if I could have got a cool eye patch at the age of 12 when I lost my eye, it may have made middle school a little little less hellish for those few months. So best of luck to you and what you're doing!
Between Grim Rocket and Grim Chaos, Gray said he likes Grim Chaos better. But it's close
I usually get up pretty early. There's just so much to do. Although I go to bed pretty late. I've been trying to get more sleep, but it's so hard! Bryan left the party early last night! - jf
This is the reason I am doing this, thank you for your well wishes.
Hey guys, did you happen to pull any pranks on each other while filming? I feel like you're both the type of dudes to have a little fun on set.
sorry to hear about your eye firstly. How has this affected your daily life?
yes. so James was also teaching every weekend that we were shooting this. We worked 14 hours a day on our show. So during the week often, where there was a couch or something, James would take a nap on the couch (in the middle of everybody working), we'd go over and take cast pictures with James while he was sleeping. He can fall asleep anywhere. And he reads more than anybody I know - bc
For the first few weeks it was very painful and I was very self conscious but now I have lost some peripheral on my right side but it doesn't really affect me massively. It's a small price to pay I feel.
Good morning, Gray! Thanks for doing this. I think you're awesome and inspiring. Is there a way I can keep following you to hear/read about what you're up to and be able to say hi? PS: Joe is way more popular since he started hanging out with you. Good job teaching him how to be more fun.
What's your favorite pizza topping?
That is funny about Joe. I have a Facebook site that I can receive messages: https://www.facebook.com/Amazing-Gray-117720188251784/?fref=ts
Considering that Bryan likes slim jims....he probably puts anything on that pizza. - jf
Thank you, it was the right choice to make in my situation so I feel very positive about it.
Hi there! As a current medical student/future physician, do you have any advice for me either about a really positive experience you've had with your doctors or even a particularly negative experience that you'd want to share with me?
Thanks for doing this, hang in there and keep fighting! I'm on your side, fighting against cancer, just from a different angle! You are inspiring with all your positivity!
How's movie shoot catering?
Yikes that's rough Sorry to hear it Are you considering getting maybe holiday themed glass eyes? Like ornament eyes? I think that would be pretty shwanky
Yes I do. The patient is always right. The patient AND their parents are always right. Listen to your patient's parents and also listen to their parents. Don't look at them like they're crazy. Just trust them. They know what they're going through more than you would know because that's why they came to you
It was pretty good on this one. Bryan would get everybody pizza, or Mexican, everything. Every Friday. It was great. - jf
I saw a picture of a rainbow eye and I want one, I wonder if I could get a festive eyeball.
Good morning awesome folks! As a fairly new father, having something like this happen to my daughter is one of my greatest fears. So I guess this question is aimed more at Lady Crimson: What were the early signs of Gray's illness? What led to the discovery of his tumors? You guys are great and I wish you all the best in the future. Thanks for doing this.
Did you get to keep the eye? I like to think if I had one of my eyes removed I'd have it in a jar on my desk for the rest of my life.
From Michelle, something seemed off. I would say motherly instincts. Something seemed off that I couldn't figure out and I would take him to the pediatirition. It was pressure in his head that would build up at night and he couldn't sleep. He would wake up very disoriented. After he would be up for a while, he would be fine. Anything that is persistently off, he was symptomatic at four. I didn't get him diagnosed until six. You kind of have to go by developmental milestones. But it's hard to tell at that age and you don't want to take him to the hospital all the time
From Gray, people thought my mom was crazy. But she was right
Unfortunately not, it got chopped up and tested for cancer
Good Morning Gray, do you believe in an Higher Power? Me being in your situation, id always think "Why Me?"
Firstly, sorry about your eye! I can't relate to that, but I've known people who have gone blind, deaf, etc. (Which aren't really the same) but anyway, 1. Kind of disgusting question, but what happens to your eyelids when you don't have an eye? Do they just fall into the socket?shudders Do they remove them in surgery? 2. How does depth perception work for you now, since you don't have two perspectives of vision? How do you manage in places you've never been?
I used to feel like God chose me to pick on me. I sort of still feel that way a little bit. Everything happens for a reason but I wonder why God chose me to have the brain tumor? Michelle says "One day Gray said, you know what mom? Sometimes, bad things just happen. And not for a reason"
I had mine removed so I don't know, I had an exenteration but some people have just the eye removed. I read an interesting article about this actually, depth perception isn't fully dependent on two eyes, I have to be careful pouring drinks and sometimes things are further away than I think but all in all its not too bad.
Hi Gray! You're the man! What's your favorite kind of music to dance to?
Follow up question, which I just thought about, do you wear the white cover in the picture all the time? Also, (I'm having a little trouble understanding your particular circumstance) if you took any covers off, is it just a socket? Sorry I'm just having trouble picturing this
Rock and roll! My favorite song to dance to is "I Love Rock and Roll"
He just sang out the chorus, too
That picture was whilst I still had plaster packing inside so I still have the white dressing but it's not as big now. As its healing inside its just a hole, the skin is healing over like scar tissue and it's very neat, my 3 yr old thinks it's fascinating so it can't be too scary.
I can only imagine the pain you've been through. If I could ask what exactly is the kind of brain cancer that you have and are you currently in remission?
Since your operation, how is your depth perception now? Have you noticed any of your other senses being higher then what they were (i.e. Hearing, smell)
From Michelle - he has diffuse fibrillary astrocytoma throughout the brain and spine. He is not in remission, we do the best we can to manage tumor growth and all the effects through chemo and surgeries
My hearing has always been my rubbish sense, I've always suffered with my ears and slight hearing loss so I do think it helped my hearing in some ways. I think I'm getting better with my sense of feel, I feel the floor better, if that makes sense at all, I'm more aware of my right side now too.
Hey Gray, I'm a neurosurgery resident currently at our children's hospital and work with kids with brain tumors. What are some things that you and your parents appreciated (or maybe didnt appreciate) from your neurosurgeon? It's an understatement to say what you and your family have been through is challenging, but your attitude is awesome. Keep it up.
Those designs are actually really cute, have you considered taking commissions from people? Do you do sewing-based designs as well, and if not is it something you're looking to incorporate?
How do you feel about people who aren't blind purchasing your eyepatches for stuff like cosplay? Would you be ok with that?
From Joe, I actually have a classic Gray story. He was beating me pretty bad in Skip Bo one day, I was completely out-strategized. I said "Gray, you know that you are really smart, right?" He responds, "well, I do hang out with a lot of neurosurgeons."
I've sold one for a panto, I would be fine with cos play, I can custom make them to order so anything is possible
Morning gray, hope your day is going well. If I may ask, what advice would you give someone who has just been diagnosed with brain cancer?
Also thank you for the ama!
Have you ever thought about a glass eye? If so, what's the process for getting one?
To not worry. That you're in good hands with your family and your doctors. Make sure your family knows that they need to trust what they believe in and not always trust what the doctors say. And your family will always take care of you no matter what you go through
I am getting a prothesis, I had titanium implants fitted during my exenteration and once I am fully healed I will have magnets attached which will hold my prosthetic eye. As I am missing my eyelid, that is going to be made out of silicone and the glass eye will sit inside that. The prosthetic team will be making a mould of the cavity soon and they will use a computer to match the skin tone. The eye will be painted to match my other one.
Hi Gray! Do you have any weird favourite snacks? I personally like eating anchovies straight from the little jar sometimes, maybe you have something new for me to try :)
Have you considered getting a cool chrome eye or something not designed to mimic a human eye? (This is a serious question due to the 'uncanny valley' effect.)
My favorite thing right now is cauliflower rice mixed with eggs and bbq spices. Yeaaah
I hadn't, I expect it would get rather cold! It would look pretty cool though
Hi Gray, it will be interesting to read your responses! After living with this for many years, what would you say are some of the most common misconceptions and/or preconceived notions that you face regarding your situation?
Also, what are your favorite movies? Take care!
Are implants and magnets standard now, or is this because you lost the surrounding tissue? From old movies, I thought glass eyes were just balls you could pop in and out.
People think that I'm fine sometimes. "Oh, he's fine, he's not chronically sick." I just want to be heard and my story be heard. Michelle says "I think people think you get cancer and they take it out, you get treatments, and it's done. But it's not like that, he's been in and out of treatment for 10 years. Some cancers are too dangerous to remove"
EDIT: To add movies, mom said Chicken Run used to be a favorite. But Gray said emphatically that it is no longer the case. He said "I love Zootopia and Rudolph the Red Nosed Reindeer"
I had an exenteration, which is the eyeball, eyelid, and all the muscles, tissues and optic nerve removed. I was informed by my surgeon that the eyeball is one third of what fills the socket the other two thirds are mainly muscles and tissue. Therefore I'm having more of a facial prosthesis than a fake eye.
What are your opinions on medical cannabis and what is holding you back from CBD trials?
Have you considered putting a small display on an eyepatch with a low-power bluetooth receiver and battery hidden in your eye socket (or wired through the band to something hidden in your hair), and using your phone to animate the patch while you're talking to people? It could be hilarious to have an eye show up on the patch and slowly get angrier and angrier (or turn into the eye of sauron) while in the middle of a conversation.
From mom, we actually tried it like five years ago. Had to get him a card. We didn't try it as a treatment, we tried it for anti-anxiety and neuro calming effect. At that point, they didn't have all the blends so the amount they were giving was so much that he would be knocked out. That prevents us from being able to maintain accurate neuro status and that's very important
That is such an awesome idea, I hadn't but I want one now!
Hello Grey! I'm 31 and I have cervical cancer, gone through two rounds of chemo, 5 surgeries, and hoping to get on a clinical trial since it spread to my lungs. I too, am often asked how I'm so positive. I tell them the alternative is depressing. I can't think about how horrible everything could become. I'd just be a sad depressed person. I too get very anxious with treatments and tests. I'm always thinking "is this where I find out there is nothing else we can do?" My mom gets anxious as well. So far I have a way forward and I focus on that as a positive. Keep up you sprints and enjoy Christmas crafts! I do crafty things to keep my mind busy too :-)
Is there any chance in hell you get bionic, see-through walls, laser beam eye?!!
P.S. You're incredibly brave!! Wish you all the best!
If you're not positive, negative things are going to happen. You get what you put out. Think positive and positive things happen. Good luck to you! EDIT: From Michelle, there was a pivotal point in which I decided that we were going to live, we were not going to let his treatments take over and stop us from living. You have to live your life. Why fight for it if you're not going to actually live for it?
If they start making them I'll be first in line,
Watched your video, thanks for being pretty awesome and having way better dance moves than me!
Besides the dancing, how do you like to spend your free time? Any favorite movies or books or hobbies you have?
We have a family friend who lost an eye on a skiing accident and said adjusting to depth perception was difficult.
Do you know if you will be able to drive again?
Doing arts and crafts. I like to do all arts and crafts.
EDIT: From Joe, his Pinterest username is "michelleandgray" He loves Pinterest!
I've never learnt to drive anyway but you don't even have to inform DVLA in the UK when losing one eye. I don't know why I find it easy it just seems fine to me.
Yo Cap, what's the best hospital food you have ever had? Way to keep battling bud! You are tougher than I.
I lost vision in my right eye as an infant, so I never knew what it was like to lose my vision because it was never there. A few questions for you:
Q: Have you noticed depth perception issues like struggling to pour a glass of water or parking a car?
Q: Have you developed your "Spidey Sense" yet? By this I mean an inexplicable realization that something is getting close to you on your blind side even though you cannot see it?
EDIT: Like, their grilled cheese's are the real deal. If I had two places to choose to get grilled cheese, it would be In N Out or the hospital
Omg I didn't know this was a real thing but I really do, that's so cool! The spidey sense that is, spilling water everywhere is not so great.
Have you thought about getting a glass eye? Or do you think that would look too goofy and you're going more for badass?
What does it feel like to see with 1 eye? Do you "see" anything different or does it feel the same? I've had these questions since I was a kid.
Dodgers! I have friends that play on a little league Dodgers team so that's why
Looking at a whole room is frustrating as I can't see everything or everyone, but my finer vision is better I feel. It's only a small amount of the right side I can't see, I tend to walk my kids on my blind side so people walk round them and don't startle me
Do you get tired of people focusing on cancer as a defining quality of you? I mean, would you rather people talk about something else more often with you?
Will you ever dress as Leela for Halloween?
I half think people just associate me with cancer. But mostly I think people think I'm a normal kid and look like a normal kid. Part of it is because I don't have the typical signs like losing my hair and stuff. It's feels bad when people give me a weird look like they're scared of me when they find out I have cancer. Sometimes my doctors focus on the bad even though I know they are just doing their job and trying to make me better. Sometimes I don't like being at the hospital because of the negativity. Sometimes I feel poisoned with negativity. Outside of the hospital I feel like I can breathe. The negativity is like smog and I'm breathing in the smog. It feels nice and good not to have negative thoughts
I have thought about it, I have so many possibilities now.
Ayo Captain Gray!
If you won a million dollars what would you do with it?
Donate all to brain tumor research. To find cures for brain tumors
Hi Captain Gray! Do you play any kind of video games? PC, Console, or mobile, it doesn't matter. If so, what kind of games are you inclined to? First person shooters? Or Racing games? or Role-playing games?
Super Mario Bros for the Nintendo DS. I play food games on my iPad. Cake Mania is one