Jan 19th 2017 by thatssorelevant • 48 Questions • 178 Points
Hi there! I have osteogenesis imperfecta type I, while I've mainly broken my legs I've also had an arm and a shoulder fracture. I go to university, have friends, and I basically try to be as normal of a person as I can be even though the disease impacts almost every part of my daily life -the symptoms are not just brittle bones, there's also getting tired faster, potential vision and hearing loss, etc. I use a wheelchair all the time except when sleeping or when I'm in a different chair. Ask me anything!
My proof picture has my eyes because blue sclera are a very common symptom of OI.
Edit: RIGHT. That was lovely, everyone. I feel like all good questions have been asked and answered and you now know literally everything about me! Thanks so much for your time and questions! If you ever have any other questions or just want to talk, send me a message :)
You actually have that typical commercial guy look. Why do you think your looks played a part in not getting more air time?
Does your dental plan reflect the dental care of the time period? A mixture of nothing and pure horror?
I'm from Ohio. How can we keep them from trying to pass bullshit legislation like they tried recently?
To be more specific, they wanted to select a fixed number of 'farmers' in the area and they would be the only sources allowed to supply the dispensaries. These farmers were pre-selected and were close to the group pushing the legislation. They would have been a legal, lawful monopoly and I can only imagine what the prices would have been.
What's your best tip for people so they avoid being in your previous situation entirely?
I emailed you about something specific, and you gave me personal advice based on my situation and even monitored the flights for a little while to make sure I got the right price. That experience really stood out because I didn't even expect a response. You're absolutely amazing.
My question is, how are you able to keep a personal touch while probably getting hundreds of requests (if not more)?
Edit: also, do you see Sydney/Auckland flights being cheap any time soon? (From the east coast)
Do you ever get used to breaking bones? Is it like "Agh that hurts" and can't move, or is it like "Aww shucks, broke another one"
I'm sure it was 99% percent my answers.
It's my opinion that the research reviewed that YourBrainOnPorn provides is accurate and a solid overview of the research in the field at this time. I don't know a lot about NoFap and PornFree other than that they are forums that provide people support for people who are trying to abstain. I know that can be extremely helpful for people trying to quit.
There is no dental plan for part time employees, so yes, yes it does reflect the dental care of the medieval ages XD
The answer to your question is to keep doing what you're doing. Ohio voters clearly thought that initiative was wrong for Ohio, so they voted it down, and in doing so, they sent a message that that type of a proposal isn't going to fly.
I can't imagine anyone would be foolish enough to propose the same thing again. MPP certainly took it into account when we worked with local activists to bring forward a medical marijuana initiative last year. We have never backed laws like the 2015 Ohio initiative, but we took extra precautions to ensure our medical initiative avoided that type of system. I imagine anyone who supports a broader adult-use initiative in the future would also take similar precautions. At least I would hope.
Great question! My best tip would be to not bury your head in the sand and hope that the situation will go away. My initial student loan balance of $74k ballooned to $107k simply because I ignored the problem, stopped making payments, and let some of my loans slip into default. So I always encourage student loan borrowers to take action rather than let what happened to me happen to them. Perhaps that means switching to an income-driven repayment plan or putting student loans in deferment. Either of these options is better than ignoring the bills and missing payments. Ignoring the problem doesn’t make it go away. It only makes things worse.
That is so kind of you to mention, thank you!
Honestly, I just feel like if someone takes the time to write me, it'd be kind of a jerk move not to respond? Maybe I'm old-fashioned that way haha. But I feel like I owe it to people, especially all you early adopters who took a chance on this weird guy with some cheap flight list, you know?
In any case, so kind of you to mention and I really appreciate it :-)
It's true that there are now hundreds of emails a day, but in terms of how, lotsa caffeine, quick typing fingers, and a decent ability to multi-task.
Thank you again!
To be painfully honest, it's been five years since I last broke something and I don't have loads of memories of breaking things. Mostly because I was young but partly because I sort of deal with the memories by repressing them.
I've spent five minutes trying to write up whether breaking bones still hurts but I just don't know. Come back to me when I break something again!
Edit: I do have an example for when I broke three things at once, but with that it's kind of obvious that it'd hurt. That shit was like the worst pain in my life. I was lying on the pavement with two broken legs and a broken shoulder and the ambulence guys were around me and I was just yelling for them to give me a painkiller. Every once in a while I'd accidentally move a little bit and scream my heart out because of the pain, and then the ambulance guy said: 'I didn't do anything!' and I was like YES SURE BUT I'VE BROKEN THREE BONES OBVIOUSLY JUST LAYING HERE IS GOING TO HURT but I don't remember anything after that, I think they did put me down or at least give me enough pain killers for me to go out. Thanks ambulance guys.
I think the AZ initiative would have lost even if every "pro-legalization" voter voted for it. It might have received 49.9% instead of 49.7%, but I don't think it'd have won. The reason it lost is because (1) there was a massively well-funded opposition (spent ~$6 million, which is maybe the second or third most ever spent against a marijuana initiative); (2) a lot of the media outlets were quite slanted in their coverage, including the AZ Republic, which is the largest media outlet in a state with few large outlets; and most importantly, (3) this was the first time it had appeared on the ballot and the media and voters were new to it. There had been no local legalization/adult-use efforts like there had been in CO, WA, CA, MA, etc.
I don't think there is any way to pass a "perfect law" because there is no such thing as a perfect law. It's far too complex an issue and there are far too many viewpoints on it to appease every single person. You also have to factor in the potential for passage. Is a ballot initiative really perfect if it is all but certain to fail?
What we have seen time and time again is that reform is an ongoing process, not a finite solution. As we have seen in Colorado, the initiative laid the foundation and improvements will continue to be made.
haha - nice... fueling the economy one snickers bar at a time!
Ohhh great question! This is going to sound silly, but Milan. I had zero interest in going to Milan, until I found a nonstop flight there for $130 roundtrip. Who wouldn't go to Milan for $130 roundtrip??
Granted, I didn't spend a ton of time in the city itself (aside from seeing an AC Milan game), but there's so much magic in northern Italy. Took a train to hike Cinque Terre, took a train up to Lake Como for the day, even took a train out to the Italy/Switzerland border to ski the alps right by the Matterhorn. All on a whim! Likely never would've gotten to do any of that if not for the cheap flight.
EDIT: flights were NYC-Milan for $130 nonstop roundtrip. Sorry for ambiguity about origin before!
Thank you, that's very nice!
Will we ever be desensitized to porn because it's too ubiquitous?
I'm super overwhelmed with all the options to repay federal loans (~$67,500 direct un/subsidized). I'm working in public service and currently qualify for the forgiveness program. What disadvantages are there to paying back the loans based on an income-driven plan or the public service forgiveness program?
even took a train out to the Italy/Switzerland border to ski the alps right by the Matterhorn.
Cervinia-Breuil? How was it? Did you rent gear or bring your own? I'll be there in 2.5 weeks.
I get that, I've had Lyme disease like 3 times, but it's been 15 years since the last time so I mostly remember it as having to take pills and use spf-50 even though I know it was way worse than I remember. When people get lyme I tell them to stop whinging about it because in my mind it wasn't a big deal even though I went through some crazy side-effects like bells palsy (facial paralysis. When I got that my doctor asked if I could still close my eyes, to which I said "yes, why?". He then casually launched into an explanation that I might not be able to physically close my eyes and that my eyeball could dry out, so I would need to get some goop to put on my eyeball at night).
I have no idea
that's the one! it's glorrrrious. i rented at a place in town. wasn't very pricey if i recall. doesn't seem worth the hassle to me to bring your own.
have a great trip!! if you are inclined hashtag any instagram photos #scottscheapflights so we can follow along and repost!
Wow that's crazy, sorry you had to go through that! I hope your eyeball is doing good & moist right now!
I do recognize that thing that doctors do where they tell you about potential side effects like it's nothing, because they're so used to it. I was once literally lying on an operation table about to be put down for a shoulder surgery when the doctor casually told me that I might not be able to lift my arm above my head anymore. I was like wAIT WHA-
Absolutely. Drug addictions and sex addiction are highly co-occurring. Studies have shown that in chemical dependency treatment programs 4/10 males can meet criteria for sex addiction. Another study showed that 45% of sex addicts had chemical dependency and 35% had eating disorders. They are highly co-morbid.
Hmm, I'll answer your question with two different stories, one story related to customers and one story related to staff.
Customers: One time a few years back it was thought that Medieval Times should hold a beer tasting event. Great idea on paper. Guests would pay a few extra bucks on top of their admission and get to taste all kinds of beer from all over the local Chicago area.
What actually happened was that basically a bunch of people got drunk real fast. Since it was after the show when the beer tasting happened, most of the staff was gone, so there was only at most 10 employees that were actually from Medieval Times that was there. Apparently when maintenance came back the next morning to get the castle ready for the show that day, they found curtains ripped straight out of the wall, display cases that were broken, basically the castle was in shambles. There was a couple there that broke up during the beer tasting event, which was really funny for my manager at the time to watch since she's seen so many couples get engaged at Medieval Times, and it was refreshing to see one just fall apart.
Staff: Once worked with a coworker who didn't know what to say and what not to say. So once it was so cold that the sprinkler system pipe burst and set off the fire alarm. Naturally, we started evacuating everyone outside (which was hard enough since it was like 0 degrees that day), but this one coworker thought it would have been funny to run around and yell "WE'RE ALL GOING TO DIE!" at all the little kids, which of course made them all cry.
That coworker was later fired for trying to steal a bunch of My Little Pony plushies.
MPP works exclusively on marijuana policy, so professionally I don't get into addressing those substances.
Personally, I believe the use of any substance should be treated as a health issue and not a criminal justice issue. I think all substances should be treated based on their relative effects and potent for harm. In other words, I don't think it's a legal-vs-illegal situation — it's a lot more complex with different approaches to different substances.
Good news, you don’t have to pay any taxes for loans forgiven under PSLF! You only have to pay income tax on loans forgiven through an income-driven repayment plan (which also only grant forgiveness after 20-25 years depending on the plan). So basically, if you didn’t claim your tax-free PSLF forgiveness after 10 years, you could continue paying for 20-25 years and receive taxable forgiveness. Needless to say, if you qualify for PSLF, this is a much better option.
Sheeeiiiitttt me at the airport IRL getting five-finger discount flights: http://giphy.com/gifs/deal-with-it-joe-biden-Me9HRX7wrTsKQ
Yes! Swimming is actually great because it gives so much freedom. I can actually 'walk' underwater which feels amazing.
I currently have 55,000 dollars of student loans. My interest is 6.75% and I feel like I just cannot make a dent. With a mortgage and car payments I just feel like this is impossible. Any advice?
Why are there rarely great deals out of DFW?
Our position is that employers should treat marijuana similarly to alcohol. Employees should not be punished for responsible off-the-job consumption that does not affect their work. Obviously there are some occupations out there that are more sensitive than others (pilots, electrical workers, etc.), but we already have public policies that address safety-sensitive occupations.
The question is how to bring about such policies. And it's worth noting that different states handle this subject in different ways. For example, some states have laws that prohibit employers from firing employees solely for engaging in a legal activity. Other states do not have such laws and allow employers to fire employees without cause. So it could be the case that this will not be handled as a marijuana-specific issue and just falls under other employment laws. But that's not to say it will result in the fairest outcome. Even in Colorado, which does have such a law that protects employees who engage in legal activities, the courts determined marijuana use is not covered because it is still an illegal activity under federal law.
This subject (employment) is NOT unique to marijuana. Dictating employment policies via public policy is always a politically sensitive subject. Lawmakers know it is touchy and so do advocates and political professionals who work on ballot measures.
That is why, ultimately, I think this is going to be an issue that gets sorted out culturally. It might get addressed legally at times, and we have seen employment protections included in some marijuana policy reforms. But overall, it is just going to be a matter of time before more laws change and the public's attitude changes. For the same reason that most employers would not want to fire good workers (and then recruit and train replacements who may not be as good/experienced) simply for legally using alcohol while they're off the job, most employers are not going to want to go through all of that for employees who legally use marijuana off the job. It simply is not good for business.
The problem is that we still have a lot of people out there who still believe a lot of the old reefer madness and actually think a marijuana user is unfit for employment. But people's attitudes are changing and as the old guard is replaced by people who have more modern views on marijuana, businesses will voluntarily change their policies. Changes in marijuana's legal status will help too — there are surely employers out there who don't care so much about marijuana as they do about having a "lawbreaker" on the payroll. And keep in mind that larger companies with offices/locations in multiple states might want/need to treat all of its employees equally, so they might not make these changes until marijuana laws change in all of those states. Or possibly not until there are federal changes.
When it comes to our work, we want to promote the fairest policies possible. But sometimes it is clear that putting something in a bill or initiative re: employment policies will all but guarantee it's failure. If we believe that will be the case, we oftentimes keep measures silent on the subject because we know it will be something that gets addressed quicker if we make progress. If our goals are to end prohibition and protect employees' rights, but it's clear that including the latter will doom both goals, then it makes sense to address the former. It will then be much easier to address the latter.
Hi, and thanks for your question! If those $55,000 are federal student loans, you’ve got plenty of options for reducing your payments while you focus on other debt like that mortgage. One of the best choices may be to look into income-driven repayment plans. These are a set of plans available for federal loans that will set your payments to be in line with your income, rather than using your loan balance as a basis.
I actually was enrolled in one of these plans while I was struggling to juggle all of my debt. You can read more about them here and calculate your potential payments using these calculators. I hope this helps!
The stupid AA monopoly there :-(
I wrote up a longer explanation here but the tl;dr is that the American Air monopoly in DFW prevents more airlines from competing on price, so fewer opportunities for cheap flights, mistake fares, etc.
I wish! It's very uncommon in my country however. In all my life I've only ever known one person with a pool in their house and they lived in the countryside, which I don't. I might get one if I ever get incredibly rich! And yes, it's definitely good for exercising and I used to do it twice a week.
What can I do to legalize marijuana? How can I help? Who can I contact, and what should I ask them? I live in NC.
Edit: added details.
Did you see this?
Patiently waiting for domestic US deals. Do you have a timeframe?
Can you not walk on ground? Your description seemed like you were in a wheelchair as a precaution, can you walk normally in certain situations?
That's really interesting
Most importantly and at the most basic level, you can talk about the issue, starting with the people closest to you and working your way out to the people furthest from you. Talk to your family members and friends. Make sure they know this issue is important to you and let them know why. I also strongly encourage you to begin by making sure they understand marijuana is a less harmful substance than alcohol — this is a critical fact that many people still don't know. In the case of opponents, people are more likely to reconsider their long-held beliefs if they are approached by somoene close to them, as opposed to being handed a flyer or seeing an ad.
As for taking things to the next level, find out what's happenign your state. You can do this on our website at https://www.mpp.org/states Find out if there is good or bad marijuana legislation on the agenda this year and then be sure to contact your state legislators about it.
You can also take action at the federal level by contacting your U.S. rep and senator — https://www.mpp.org/federal
Look around online to see if there are any local organizations that have already been formed to work on this issue in your state or city. If there are, try reaching out to them to see how you can get involved.
We hear about a lot of problems with servicers. And we did see the news that came out yesterday about Navient. We’ll be covering this on our blog along with what borrowers can do. If you’re having problems, see here for where you can go to report the issues and potentially find help.
Ahhh hopefully this year, but lemme explain a bit more about why I haven't started doing domestic US deals yet.
Flights to Europe typically cost $900. Many of the flights I'm able to find and send out cost $400. Savings: $500.
Domestic flights vary significantly by routing, but typically are $350 or less. Let's say you're flying JFK-LAX. Typically $350. A really good price for that route would be like $225. Savings: $125.
Obviously nice to have those savings, of course, just not nearly as much on an absolute level, you know?
Not really. I mentioned somewhere else that I'm in a wheelchair both as a precaution and because my muscles are just too weak, but this AMA is huge so I get that you didn't see that. I can walk with crutches and I can walk if I hold something like a table or a person, but without any help I would probably make it a meter before just having to sit down on the ground. I can only shuffle my legs without help, not completely lift them.
I support legalization, but I don't want to do it on the grounds that it is more or less harmful than a legal substance, because that would set the wrong precedent for ending all drug prohibition. It's a matter of personal freedom to commit a victimless crime, not an issue of what is better of worse for your body.
Can you explain in layman's terms what you do to reduce the student debt of individuals?
Hey Scott, love the free emails! I signed up last time I saw you in here and I've already booked two flights to Europe for this year! I was wondering if there'd be a way to filter the emails so that I only receive them if they contain an airport around me? It's really disappointing to see an awesome deal on a flight I'd love to book, only to see that the closest airports are 10 hours away.
Thanks for doing this!
How much can you squat?
Fair enough. Please note I said you should talk about why it's important to you. That could be any number of reasons.
But if your goal is to increase support for legalization, I encourage you to consider why it is that people are opposed it, which 99 times out of 100 is because they believe it poses too much harm to be made legal (be it harm to consumers' health or spirit, harm to non-consumers' around them, or harm to society overall). If you want to convince that person that they should make marijuana legal, you need to address that concern. You don't necessarily need to compare it to alcohol, but that is simply a good basis for comparison given our nation's history with prohibition/repeal and the similarities in the products (i.e. they should be used by adults and not kids, they are part of our culture, they should be used responsibly, etc.). If a person is willing to accept that alcohol should be legal, they will have a heard time coming up with reasons why marijuana — a substance that is objectively less harmful to the consumer and to society — must remain illegal. But as I said, you should make the case you are comfortable making. I'm simply providing my advice for what appears to be the most effective when it comes to shifting people's attitudes.
Absolutely. Let me put on my ELI5 cap for a second. At a high-level, we do 3 major things:
First, we write (A LOT) of blog posts about how to pay off student loans quicker and easier. For example, here’s our Ultimate Guide to Paying Off Student Loans Faster. This is one of our more popular guides.
Second, we have a free web app which helps borrowers manage, track, and pay off their loans faster. Specifically, it helps borrowers keep all their loans in one place and get specific recommendations on how to pay off their student loans quicker. (We use a pretty neat algorithm to help with the latter.)
Third, we talk quite a bit about refinancing student loans to lower interest rate and get out of debt quicker. It’s not right for everyone, but for some people it can make a massive difference. For example, we have a team member here who refinanced his federal student loans with Earnest a couple months ago and dropped his interest rate from 6.05% to 3.43%. Massive win for him, and for the thousands of other borrowers who do the same.
There’s a lot more we do, but in general terms those are the 3 bigger things we’re doing right now. We’re also moving into other areas to help people improve their finances in general. For example, how to lower credit card debt, whether you should rent or buy a home, and more things along those lines. What else do you think we should do?
Amazing!! Where are you going??
Great question! So we just implemented that functionality (seriously last week) to filter alerts so it's only for airports you're interested in, but alas it's one of the perks for premium subscribers. Really sorry about that!
It seems more likely that they'd collect the good and bad reviews as raw footage, and simply not edit the negative ones in.
I can't speak for comparison (never been to Medieval Times) but we go to RenFaire every year. We get in free and my wife knows pretty much EVERY BODY. And we live like 15 minutes away from the grounds now.
What is the primary difference between your group, MPP, and NORML? Do your organizations collaborate?
Hi Andy. I have just over $31,000 in student loans. I'm severely underpaid making around $30,000 annually. I've been making $500 payments monthly for a while, and my debt is slowly going down, but I'd like to see it go down quicker.
Other than finding a job that pays more, what strategies can you recommend I use to reduce my debt? The interest is the same on each of my loans. Does it make sense to pay off the smaller of the loans first?
I've always wanted to go to the Renaissance Fair near me (Bristol Renaissance Fair) but it's always during when I'm at school or something, but I look forward to whenever I can go!
NORML has a smaller staff and a large network of state, local, and campus chapters all over the country, which are largely organized by volunteers.
MPP has a larger staff but does not have chapters. At the state/local level, we work with a variety of volunteer activists and organizations, which includes NORML chapters/members/leaders. NORML has also rallied its network to support a lot of the initiative campaigns MPP has organized, and at times contributes to the drafting process for initiatives and bills MPP is supporting.
On a personal level, former MPP staffer Steve Fox and I co-authored a book with NORML Deputy Director Paul Armentano. And since Paul is the most knowledgable person I know when it comes to cannabis facts/research, I often turn to him as resource or forward reporters his way when they're seeking experts.
Hey, thanks for the question. First, let me give you kudos for making such large payments on your loans, I’m a big proponent of paying down your debt ASAP. So let’s talk strategy. The fastest and most efficient way to pay down your loans is to target paying off the loan with the highest interest rate first (after making the minimum payment on all other loans, of course) and then going from there. You can use our Prepayment Calculator to estimate how much time and money you’ll save by efficiently allocating additional payments. Secondly, you may want to look into refinancing. Based on your current debt-to-income of at least 1, your odds may not be great for being approved. However, you’re paying your loans down fast enough that you may soon be in a position to seriously consider it. Refinancing can lower your interest rate, helping you reduce the total amount you’ll pay. Student Loan Hero also provides a free dashboard where you can sync your student loans and manage your repayment; you might find that helpful.
What's the best way to lobby for decriminalization while maintaining your privacy?
Hello, I currently have about $35,000 in student loans and just recently bumped my payments to the maximum amount of around $500 per month. I was wondering if it's possible to pay off my higher interest loans (6.5%) first and then move to the lower interest loans (3%) through fed loan servicing? Or should I try to consolidate my loans and get a lower fixed APR if that's even possible?
This is a great question. I spent countless hours collecting signatures for ballot initiatives in Colorado and frequently came across people who were supportive but feared signing because they feared their employer would find out or that it would somehow become public. I even remember a few saying their husband/wife would kill [them] if they found out!"
Sometimes it was obvious that the person was misguided or just didn't want to stop (e.g. the person who said "I'm a lawyer and I'll be disbarred if I sign," which any lawyer would know is bullshit). But sometimes it was obvious that they were truly worried. People who were on probation or parole or who know their employer is incredibly strict about marijuana, who fear they will be suspected of using marijuana and subjected to a drug test if someone saw them signing or saw their name on the sheet while signing.
Ultimately, I would just encourage you to do whatever you are comfortable doing. Maybe you aren't comfortable being at a public event handing out literature, but maybe you would be okay with dropping it on doorsteps or placng it on car windshields in the evenings. If you aren't comfortable talking to the people you know, maybe stick to strangers by participating in a phone bank where you're calling random people. If it's a campaign, perhaps they need assistance with data entry, licking envelopes, or coordinating other volunteers?
Glad to hear you’ve bumped your payments up! By maximum, do you mean the most you can afford? I’m asking because there shouldn’t be any limit on your monthly payments. And yes, all lenders will allow you to choose which loan you want to apply extra payments to. This as long as your loans have not been consolidated. You can learn how to do that here. It’s likely going to be hard to find a lower interest rate than 3%, so you may be better off using the Debt Avalanche to pay off the higher interest rate loan first, or you could consider refinancing only that loan and leaving the 3% loan as it is.
Any good honeymoon success stories? Weddings are so expensive, I'm losing hope of being able to travel with my husband for the next few years :(
Do you use a wheelchair because you're healing? Or has it gotten to a point where you can't walk without a high chance of fracturing something?
Ahh well first off congratulations to you and yours!
Longer answer: you're absolutely right that honeymoons can be suuuuper expensive, especially with summer flights and whatnot. But one of the most gratifying success stories I see each day are couples who didn't think they'd be able to afford a honeymoon but ended up getting one because of the list!
Some of the more popular honeymoon destinations for US travelers of late (along with price):
- Paris for $351 roundtrip
- Mallorca for $469 roundtrip
- Croatia for $541 roundtrip
- Rome for $498 roundtrip
- Hawaii for $475 roundtrip
Not nothing, obviously, but hopefully much more affordable than the $1000-to-Europe many people are used to paying!
A mixture of both. The last time I broke something was five years ago but it was three things at once so it definitely was a longer recovery process than usual. My muscles are both too weak to support my body weight and it's also definitely safer to be in a wheelchair as the chances of falling are way lower.
I'm a felon for $35 dollars worth of weed. My official crime is distribution of thc with the modifier of party to a crime. In Wisconsin this type of felony can be expunged but it needed to be set up at sentencing and it was not. So my question is do you or anyone you know help people in this situation? Kinda seems terrible that I am a felon for the rest of my life, can't find housing, can't find decent jobs, all because I was at a house when weed was sold. Can you help?
$475 round trip on Hawaii!?!? assuming that this is per person which is STILL ridiculous. Food included? Cause god knows those flights LOVE to be technical with it being a "domestic" flight despite the 12 hours it takes.
Have you seen Unbreakable?
Keyword "National". Local commercials don't make nearly that much money.
Also really only if they abide by Actors Guild rules. And if one actor is, they all have to be.
I wish I could but that sounds like something you'd need to talk about with an attorney in your state. I'm just a lowly non-attorney spokesperson...
I'm very sorry to hear about your situation and I'm sorry I cannot do more to help. I wish you the best with whatever approach you take to overcoming it and assure you MPP is doing everything it can to prevent these cases from occurring.
Yeah! $475/person. Wish that were for 2! But when prices from Atlanta are typically $700 to Hawaii, $475 ain't bad!
I haven't. It's one of the main questions people ask when learning about my disease though, and I'd love to watch it because I think the guy with OI is like a supervillain right?
Kinda offtopic: I was once in camden market in London where a guy in a leopard onesie tried give me the dvd version of Unbreakable after I'd told him like five times that I don't have a dvd player. He insisted!
Hey Scott, I've been a premium member for a couple months now and as a Cincinnatian I'm still waiting for that "Holy Crap!" deal that everyone else seems seems to get. My question though, have you ever been burned by third party travel dealers like Travel Merry and Explore Trip? I helped a buddy out by finding him cheap tickets to the Phillipines. It was through Explore Trip and after booking I decided to check their reviews. They were awful so I got nervous and cancelled right away. Has that ever been an issue with you?
Resident doctor here.
I just found it super fascinating to actually see the blue sclera of your eyes. We often read about it in textbooks, but rarely get to see what it actually looks like. Thanks for the pic! :)
(In accordance with the rule about asking a question) Do people comment on the sclera? When you meet new physicians, can they point it out right away, or do you usually tell them about your OI first?
Hey there, thanks for checking in! Ahh the Delta monopoly puts a damper on cheap flights out of CVG, but it was one of my home airports growing up and I search for it with every possible deal.
Were you on the list in November when the flights from Cincinnati to mainland Europe ($400 roundtrip) or Greek Islands ($500 roundtrip) popped up? Those were the bees knees.
I haven't been burned personally by any OTAs like those you'd mentioned, but I've read the same reviews you have. I'm torn about how much weight to give them -- after all, how many people take a flight that went as scheduled and feel motivated to write a review of the company they bought it from online? So I think there's a bit of a response bias at play, you know?
That having been said, there are real differences between buying from OTAs and buying directly from airlines. Without typing a total wall of text I'll just link to the FAQ I wrote up about OTAs, but if anything there you're unclear about happy to go into it more!
Cool! And yeah for me it's the most normal thing in the world, being constantly surrounded by family members that also have it.
People do comment on it, and the funny thing is they mostly can't immediately pinpoint what's weird about my eyes, as it's so uncommon. I think it's only happened once that someone could tell what was different about them without me telling!
I also said it'd be a lot more valuable to me if they had Android Auto, not just Apple CarPlay
Its doesnt? Chevy is suppose to support both
What is the best argument to make for marijuana when talking with someone who is very sternly against it? Living in Tennessee, I know quite a few people who are simply ignorant to the facts and refuse to accept them when they are brought up. What can I say to them that might set off a light in their head and make them rethink what they previously thought was true?
A year ago I dont think it did. (We filmed mine in Oct 2015)
Marijuana is objectively less harmful than alcohol to the consumer and to society. See https://www.amazon.com/Marijuana-Safer-Driving-People-Drink/dp/1603585109/ref=sr_1_1?s=books&ie=UTF8&qid=1383084981&sr=1-1
I've booked a flight from Frankfurt to Cincinnati with a layover in Detroit and back I have a layover in Washington DC. Do you know if it is possible to skip the flight from Cincinnati to DC if I want to visit the city a day or two before the departure?
I booked the flight for 500€ 3 month ago. I think it is way cheaper in winter. The last time I was in Cinci it was summer and I payed around 1200€. Someone told me that CVG is one of the more expensive airports in the US.
And if you have time: I am in Cincinnati the whole February. Any suggestions which US city I could fly to on a low budget for a short trip?
What's your favorite thing to draw on your casts?
First off, happy Pie Day!!
Ahh alas if you skip any leg of an itinerary the rest of the itinerary gets automatically cancelled. So you can only skip a leg if it were the last leg of a trip you didn't want, but what you're talking about would cancel your return flight to Frankfurt.
Chicago's not far and a great city! And be sure to go on the Bourbon Trail in Kentucky, it's fantastic.
All most of my fractures happened when I was in primary/secondary school, I would usually just get the entire class to sign them so I looked popular. I was a regular in the 'cast room' in the hospital though, so they allowed me to choose exclusive colours or do combinations of two colours which was pretty cool.
I have seen some real bargains but the stopovers can be long. How long would a stopover have to be before you decide it isn't worth the saving? Back in 2012 I got cheap return tix to Amsterdam with Garuda, stopovers in Jakarta and Dubai before Amsterdam. The stopovers really added to the exhaustion.
Hi, I dont mean to be a weirdo but you have pretty eyes. So, have you been told what minimum amount of force is necessary to break your bones? Do you have any protective measures? And has anyone ever compared you to Joker from Mass Effect? He's a pretty integral character who also has brittle bones but he's apparently the best pilot ever.
Great question. The answer is partly to-each-his-own, but also partly depends on the city you're laying over in.
If it's in a city like Frankfurt with a quick-and-easy train from the airport to the city, I actually like half-day layovers because it gives me a chance to sample a new city that I might not have seen otherwise and then decide if it's worth coming back to. I've gotten to do that in places like Frankfurt, Seoul, Hong Kong, etc.
But you're definitely right that multi-leg trips are usually much more exhausting than direct flights. Nice if you can get em cheap!
Thanks! I like them too, some people say they look hazy, cloudy or dark (usually when talking to someone they don't immediately realize what's 'wrong' with my eyes, they just think they look weird) so compliments are always welcome.
I have no idea about the force thing and I suppose my entire life is one protective measure, I have to be extremely cautious at all times. For example, if there's people near me and one of them pushes another, even if it's just a joke, I will immediately back up to lessen the chances of someone falling on me, it has become a reflex. Being in a wheelchair also causes me to have to put less pressure on my bones, thus causing there to be less moments when they could break.
No one ever has! I just did some googling and it seems really cool that he is in such a massive franchise. I'm also very interested in those medicines from the future that he's taking!
That has an semi-sadistic tone to it. Have you ever broke / fractured any bone because of someones doings?
Hah! Aww that's Chela. She's a rescue so not 100% sure what kind of dog, but we think a dachshund mixed with a pit bull. Definitely a Grade-A pup :-)
Sort of. You know how in gym class your teacher always tells you to 'focus on the ball!' ? Back in primary school when I was able to walk for a while, we were doing a ball sport and because we were both focusing on the ball, I collided with someone else. We both fell, I broke my arm, he was fine.
Another time I was in a chair and someone pushed it forward a little bit, and sort of pushed my legs into a cabinet that caused one of them to break. I don't really remember it too well. I think that's all times it had to do with someone else, but I remember less than half of my fractures.
I've been waiting for a usable USA > Hong Kong flight. Hoping I can finally get some family members to visit me for the first time. Been here since 2012! You have or think any will pop up for summer?
That is pretty extreme in a way. On a side note, or if you want to share, do you know what kind of effects will / could having children have on you?
Ohhh awesome! Where in the US are most of your family members?
Yes, I think there's a strong chance cheap-ish flights to Hong Kong will pop up for this summer. Plenty of time for it to happen.
P.S. Where's the best dim sum in HK?
Good question! I don't really know, like I mentioned somewhere else, a doctor once told me that my hearing loss could get worse if I were to get pregnant. Lots of people with OI also have to have c-sections to minimize risk of fractures.
You didn't specifically ask but there's also the moral dilemma of having children when you have a genetic disease, as I think there's a 50/50 chance of my kids having it. If you want to know my thoughts on that, let me know!
Oh man. I highly recommend everyone travel solo at least one, purely as a learning and get-to-know-you experience.
But personally once I've gotten that growth out of the way I'm a big fan of shared experiences. Misery loves company :-P
Honestly I don't really have to think about my day to day so seriously. It comes naturally because I've been doing it all my life.
I'm very squeamish when it comes to broken bones, I can't handle people talking about it at all, so I think I would be the worst parent ever to a child with brittle bones. If they'd break something I'd just run away screaming. It obviously also depends on the person I'd be having children with. The technology is developing with things like embryo selection too but that's a huge moral dilemma too. Basically, I don't know!
When we were looking at it I thought it was a nice car, would probably be about $35K, and would be great for a lot of people. Possibly me if I could've afforded it.
Ahh fantastic! Cheap flights to Colombia pop up fairly regularly, so don't book too early. (Don't wait too long either since it's peak summer.) I'd recommend monitoring prices and booking if they get below $350 roundtrip, and setting late March or so as the deadline to book if nothing great has popped up before then.
If you're feeling saucy monitor prices out of NYC too bc it can be a lot cheaper and can be worth a Megabus ride up to take advantage :-)
I think my dentist does need to know about the disease because it affects them in some way, but I'm not entirely sure how. Google will probably know.
I did once know someone with brittle bones, but I never knew about the blue sclera thing. Do you know what it is that causes that? Also, are there any treatments / therapies you do to help it, or is it just a matter of coping?
Nothing at all, honestly. They gave us some nice coffee and food while we waited to be bussed up to the house. Then it was a 15 minute session of comments. Cameras were all pretty damn hidden. I knew to look for them.
I am considering it! Hoping to do it a bit later this year :-) It'd probably have to be a slightly different list since what's "cheap" for business class would shock people used to econ prices, you know?
But yes, I do every once in a while see big discounts for business fares! Found some $377 roundtrip US to Peru business class seats last year and just this week sent out €500 roundtrip Oslo to Zanzibar/Seychelles/South Africa in business.
The sclera thing has to do with low collagen. Wikipedia knows it better than I do. There is no cure but I take a weekly pill to help with bone density, I also have metal rods in a lot of the bones in my legs which causes me to not be ably to pass a metal detector test!
There's loads of options for therapy, I personally have had physical therapy all my life and when I was younger I had creative therapy to help me overcome my fear of casts being cut off when a fracture is healed. (it's a scary process okay, a guy in a mask takes a miniature buzzing saw and uses it less than an inch away from your leg)
Hmm good question! I haven't yet, though it does sound like a perfect stepping stone on my path to world domination...
And your talk of a small tropical island just sweetens the deal. I'm in! Where do I sign up for your tropical excursion list, u/happytrailz1938?
Yeah I love them, they're so unique! It's really strange for me to talk to someone else with blue scleras because it occurs almost never in everyday life. The metal rods are a result of breaking something, it takes quite a surgery to insert them so I don't think it'd be done as a precautionary measure.
Hmm. Considering that in long space flight, the inability to prevent bone and calcium loss can be a major problem,often resulting in pathological fractures upon return to earth.
Wouldn't a good series of treatments for Osteogenesis imperfecta have a major bearing on handling bone loss in space?
Might be worth looking into for NASA funding, too.
Incredibly fucking open about my sex life.
Ooo great question! Like I regretted going there or regretted buying the ticket?
Nice thought! I don't think there's too much research on OI and I'm actually kind of fine with that. There's other things out there that affect people's quality of life way more that I think should be prioritized.
What potential side affect (such as hearing/vision loss) do you worry about the most?
Well... actually, I fucked one of the participants a bunch of times.
Anal sex used to be easy, but it got difficult again, so we're working towards that again.
Amazing!! Ahhhh I so love hearing success stories :-) And thank you for spreading the word!
Re: timing, I think it was a coincidence. The biggest cause is an unadvertised fare war between the major airlines, and those pop up because of a multitude of factors like demand, unsold inventory, pricing, fuel costs, etc. but not so much a particular time of year.
For me personally it's hearing loss. If I'm correct, the side effects show themselves pretty early in life, so chances of me also developing vision loss are pretty low. I think I remember a doctor saying at some point that the hearing loss can get worse after a pregnancy 'but that the miracle of life compensates for it'. It was weird.
The effects are completely different depending on the person; almost everyone in one side of my family also has type I OI, and we all have a mixture of the symptoms. I'm the only person in a wheelchair, but I have perfect vision and slight hearing loss. Another family member has had 3 fractures when they were a toddler, but they need to wear hearing aids and glasses.
Can your condition be passed on to your children if you were to have any?
There's a 50/50 chance I think.
Must be quite a big decision if you suffer terribly from something and know that to have a kid would mean you could well be passing the suffering on to another generation.
Considering one whole side of your family has your condition, has the subject ever cropped up between you and your parents?
Not everyone has it, it occurs mostly in females, even though some females also don't have it. It's a lottery! I have talked about it with my mum, and she finds it kind of difficult. She's only broken about five things in her life and it has never majorly impacted her, so she didn't really think twice before having kids - she'd never imagined it being so bad with me. I've never blamed her for it even though I personally don't think I'd ever put children on earth with my condition. There's already an overpopulation problem, there's loads of kids out there that need parents, how selfish would I be to be like 'well, I want it to be MY kid'? It's different for everyone of course and I'm completely fine with people in my family having kids, it's just that, with my current mindset, I would never.
What exactly am I looking at re your eyes?
Edit: That sounds cheeky, I'm not trying to be I just don't see anything wrong with your eyes at all!
'The white of the eye' or sclera in my eye is not clear white, it's sort of a blue-greyish colour.
Don't really know how to properly phrase my question...What kind of pressure does it take for you to break a bone? Like, what kind of contact is required. What's the gentlest contact you've had that caused a bone break? Sorry if those sound weird.
It doesn't necessarily have to be contact. Most of my fractures have been me falling. The 'gentlest contact' I've had that caused a bone break was just standing. I was standing and then just broke my left leg, which caused me to put too much pressure on my right leg and have a small tear in that as well. I had one and a half cast on for a few weeks, that was pretty bad.
It has to do, like everything in the disease, with inefficient collagen. Wikipedia tells me this: The blue-gray color of the sclera is due to the underlying choroidal veins which show through. This is due to the sclera being thinner than normal because the defective Type I collagen is not forming correctly.
Do you still feel bad about your condition or do you just not care? What about your family, what do they think of your condition?
Difficult question. I mostly tend to not care. In my daily life, I hugely just forget about my wheelchair entirely. It's such an essential part of my life that it'd be weird to not have it.
I would obviously prefer just to be able to walk up steps, get into a bus or train, get through a small door, be able to cycle, but I'm also very happy with the fact that I can get assistance to use public transport on my own for example.
It's a genetic disease so almost everyone in my family also has it, although in a much milder form. No one else is in a wheelchair. They obviously feel bad for me, but again, it's such an integral part of my life that we don't really ever talk about it.
When mowing your yard can you cut more than 1/4 inch of the blade of grass at a time without damaging the integrity of your lawn?
I don't have a lawn :( lots of houseplants though
I've had physical therapy all my life. All my fractures have occured from age 1 to age 16, so I used to break something once or twice a year. I would break a leg, get surgery, have the cast on, get it removed, have physical therapy, sort of recover and then I would break something again.
For the last couple of years I've mainly just gone to the gym and worked out to try and keep my muscle strength up. It's way easier to be lazy and accept the situation as it is than to go to therapy again and try to walk - I have an appointment set up with some specialist doctors though that are going to do a full checkup and see whether it would be a good idea for me to try and walk again or whether there's too much risk. Sorry for rambling!
Have you ever eaten rhubarb cake? If not, try it. it is good.
I've only ever seen rhubarb in canned form and it looks like puke. Thanks for the recommendation though.
if u had a character in a down and dirty mortal kombat-style fighting game, what fighting moves would you have?
I would probably love everything to be catrelated, so like my ultimate would be me unleashing a see of cats and drowning my enemy in it.
If you could land a punch on anyone, who would it be and why?
Cliché as it is, Donald Trump. I just absolutely despise that man, everything he does and stands for and I think it'd be the most satisfying feeling in the world. Then again, I can't hit very hard.
With your disease do you have to follow a particular diet since I assume you process calcium differently?
I don't think so. I presume if a different diet would alleviate my symptoms, my doctors would tell me! It mostly has to do with collagen I think, not calcium.
How is your pain from breaking the bones you have? I broke my back, tailbone and pelvis 6 1/2 years ago and I am just constantly in pain! I was in a wheelchair for a short time until I relearned how to walk. So I can walk still, but I'm always hurting. Do you suffer from a lot of pain from the hardware you have and the bones you have broken? What do you do to reduce the pain?
I'm so sorry for what happened to you! I'm not in constant pain, but the fractures do sort of come back to haunt me. I have loads of complications of them and every once in a while one of them will start hurting again, but it's nothing that can't be fixed, it's mostly discomfort.
Years of practice!
Do you or have you considered a service animal to help you with your day to day life?
I absolutely love animals but I don't think that'd be of much use to me. I can basically do everything myself, except for reaching high cabinets and stuff. Usually when I drop something on the ground, someone will reach for it and then I'll get it before them and say something like 'Well I'm closer to the ground!!'