May 30th 2017 by able2sv • 8 Questions • 64 Points
Hey guys! My name is Steven and I'm a 20 year old with SMA type 2. SMA is a genetic neuromuscular disease that essentially prevents the development of muscle, and because of that, I have very minimal upper body strength and use a powerchair for mobility. SMA affects thousands of individuals in different ways, and can range from extremely severe cases to late-onset more mild ones. As a "type 2", I fall in the middle of that spectrum.
I just finished my junior year as a graphic design student at St. John's University, and in 5 days will be moving to Manhattan for a summer internship. Because I need a lot of assistance for various daily activities, I have nursing care both when home and when I'm living at college to help me achieve the most independent lifestyle possible.
As a graphic design student, I really enjoy the arts and creative projects, and am a huge fan of comedy. I also work for my university's newspaper, and am a huge New York Mets fan.
Without further ado, ask me anything! 😃
Congrats on your upcoming internship! I'm thrilled for you. This is such an exciting time/age in a person's life :) Are there any specific anxieties or things you're excited about as you relocate to such a chaotic urban setting?
Definitely! I'm very excited to be so close to so much action, and the place I'm going to be interning is a pretty iconic building, so that's really exciting as well.
As far as anxieties, transportation will be interesting as I can't drive, and the accessibility of the public transportation system is notably unreliable. Luckily I'm within walking (wheeling?) distance to my job so I won't need to rely on it. It'll also be my first time working in a professional office environment so that first day of work I'll probably be anxious.
Yeah. I always wanted to be The Real Slim Shady too but doesn't seem like that'll work out either.
Would you date someone with a disability? Can be SMA or something else.
I would, although I think logistically dating someone else with SMA or a similar disability would be pretty difficult. I'd never rule anything out completely, but I think it's important in a relationship to be able to have some independence as a couple, and that is far easier with some disabilities than others.