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HealthIamA (IAmA handicapped 22-year old with brittle bone disease. I just started my own YouTube channel, "Rollin Through Life". Ask me anything!!) AMA!

Sep 8th 2017 by Kurdishkong • 5 Questions • 50 Points

My short bio: Hi guys! My name is Ronahi. I'm a Kurdish-American poet. I just started a YouTube channel to share my experience of life in a wheelchair.

I have a rare genetic condition called osteogenesis imperfecta, which makes my bones very fragile. I've broken my bones at least a few dozen times (currently sporting a hot-pink cast on my leg - stylin'!) and use a wheelchair to get around.

I started this channel because I want to spread awareness of my disease and challenge perceptions of handicapped people. This channel is a way for me to share my life experiences and advice for people going through difficult times. And, perhaps above all, a way to introduce to people just how "normal" my life is, and encourage dialogue and connection between people of different abilities.

Have a question about me or my condition? Ask me ANYTHING! Seriously. :)

My Proof: https://m.youtube.com/channel/UCUs2Xrt9k2kChWavsNylNAw Please check out my first video "What Do You See When You Look At Me?" Poem #1. By clicking on the videos tab.

Q:

Have you ever played the game Mass Effect and familiar with the character Joker played by Seth Green? I've always wondered what someone with brittle bone disease thought of his portrayal of the illness.

A:

I love video games, but I've never played that one. I never knew that there is a character with brittle bone disease. That is so cool. I'm going to check that out for sure. Thank you so much for commenting and giving me that info


Q:

What did you have for lunch ?

A:

Nothing yet. Let's go, your treat? ;)


Q:

I don't have a clue what to eat. Need suggestions ;/

A:

Mac n cheese ftw


Q:

what do you think of the situation in venezuela ?

A:

Very troubling, I wish Maduro would just leave Despacito alone! And also stop starving his own people.


Q:

is there any specialized protective wear for your condition?

A:

No, there isn't. That would be nice! But I just have to be very cautious. And even though I am pretty careful, sometimes my bones just break - spontaneously. I'll just feel an intense, sharp pain, and I know pretty much instantly that something has fractured or broken. My bones are just so brittle that, protection or not, careful or not, sometimes they just break.