Feb 27th 2018 by arthritick • 15 Questions • 57 Points
We're Jessica Chobot and Andrew Bowser, hosts of the Bizarre States podcast. Each week, we dive deep into famous hauntings, UFO encounters, and the downright bizarre. Now we're going even further with a new monthly show Bizarre States: Declassified, airing the last Monday of every month on https://www.projectalpha.com. Each episode will be a longer, in-depth discussion on a single topic (Bigfoot, weird Disney, etc.). To celebrate our first episode airing today, we're here to answer any questions you may have on all things weird and supernatural. We'd love to hear your own spooky stories too. Ask us anything!
EDIT - Hey y'all! We have to get started on filming Nerdist News for today but we'll check back in a bit to answer any remaining questions. Thanks so much, this was super fun!
I feel your pain RA is a horrid condition, one that often gets overlooked or brushed off by people, especially in younger children and young adults. I was diagnosed at 15 after close to a decade of misdiagnosis and incorrect treatment, humira is a wonderful drug especially when taken with methotrexate, unfortunately after nearly 10 years on it it stopped being so effective so I’ve been moved onto tocilizimab, I was just wondering how long you’ve been on the humira and if it was still as effective as when you started it?
Hey guys! Love the show
Two parter, 1 who would be your dream guest (living or dead is fair game)
2 Bowser-centric question, as someone who’s had a somewhat similar beginning to their career as you seem to have had, any career advice for someone looking to get into the creative film/editing/media field?
I’m sorry to hear that! It’s always frustrating when the body suddenly stops responding to a drug that’s worked so well in the past. Then you have to start all over again.
I’ve actually only been on Humira about 6 months. It seems to work fairly well. I was on Orencia before this, but my insurance company decided they didn’t want to cover that treatment anymore and forced me onto Humira. It feels different than Orencia did, that’s for sure. I’ll feel effects a few hours after the injection, but after about a week, I start seeing inflammation again. My prescription is for injections every two weeks, which isn’t quite cutting it. Not to mention, I’m developing site reactions to the shots. They seem to get worse every time I do them.
How is the Tocilizimab working for you? What do you use for pain?
Start doing your own stuff! You can't wait for someone to hire you, or bring you into what they're doing. You have to make your own stuff. Shoot a TON of videos, even crappy ones, learn the ins and outs of editing and what makes shots work together. Shoot weddings, Bar Mitzvahs, anything that starts you thinking about how to visually tell a story.
Have you any advice for other sufferers, such as my ex au pair, who is otherwise pretty young, sociable and physically fit?
Are there places where I can direct her to support without it being depressing/downbeat (I tried to show her a tumblr page, but it was filled with people complaining about it, etc)?
Do you have advice for young adults (ie her) with the condition who like to travel?
How grown up are you? Do your parents help, or are they difficult? (my au pair is reaching 30; I'm around 25 and autistic, but feel more like 22. I live at home, she's currently travelling the world after leaving her flat of many years)
Hey! I haven't heard of your podcast before, but it seems intresting! Have you heard of last podcast on the left? they also sometimes talk about alien stuff, or anything in the supernatural really.
Honestly, the subreddits r/rheumatoid and r/thritis are pretty helpful. There are so many different people in there, of all ages. I’ve actually made a few RA/autoimmune friends off of Tumblr. It definitely helps to have someone your age to talk to who knows exactly how you’re feeling.
It’s awesome that she’s traveling the world! I wish I was! It’s probably likely she’s already aware of most of the advice I could give her, if she wasn’t just recently diagnosed. It can get difficult to stay in a good mental state when you’re chronically in pain and fatigued. I have had problems with depression, as lots of chronically ill people do.
I think my number one piece of advice (for pain) is to always have a bottle of ibuprofen and a heating pad around. I don’t travel anywhere without either of those. I also make sure I keep my red meat consumption low, because it always causes inflammation for me. And I’m sure she knows this, but you just have to make sure you don’t push yourself too hard. That’s difficult not to do while you’re traveling, since you only have so much time to sight see. But it’s important to know your limits and get enough rest.
If she doesn’t have anyone to talk to, she’s welcome to contact me! I’m always up for new friends, especially if they have RA. You can DM me if you want to give her my info.
As for being grown, I guess I would say I’m fairly grown. I’ve been living on my own for about 3 years now. I’m still very close with my mother, who has been the most supportive and loving person throughout all of my life. She’ll always offer advice and encouragement when I need it. I pay for my medical bills and handle my care, but I’m still on my father’s insurance.
I have heard of it although I haven't listened to it yet. Thanks for the rec! - Chobot
I work at a university with a master's degree and I mainly do cancer epidemiology. My average day mainly involves working with a large database of patient characteristics and disease information (e.g. age, diagnostic tests received, medications used, tumor type, date of recurrence, etc). The main skills that are required are basic statistics and computer programming that I learned in the first year of my master's program. When I'm not working with the database, I'm usually writing to share the results of what our study finds. I write reports and create graphics which I share with other researchers involved in the study, and I also help write medical journal articles which we try to publish. My average week also involves a lot of in-person or phone meetings with the doctors and professors who run the study that I work on or with other staff from collaborating research centers. I sometimes get to give presentations to students or other medical researchers to talk about what our findings are. I work in a normal office type of setting, and when I'm having a flare up I can easily work from home from my computer. The nice thing is that everyone is pretty understanding since they all work in the medical field, and I have access to great medical care at the university itself. I work with a database of information that has already been collected, but many epidemiologists also design questionnaires and organize the collection of biological samples when studies are first starting up. I work in a more academic setting, but there are plenty of jobs in government or at pharmaceutical companies, for example. Hope this helps.
Are you concerned that since Chris took the id10t podcast away from Nerdist, it will have an effect on your listenership?
Also, what was that thing that always almost chased me out of my Grandma's basement?
- Nope! Chris' podcast has nothing to do with ours.
- Probably a goblin. ;) -Jess