Top Health Reddit IAmA's http://www.topiama.com/cat/health The latest Health IAmA's collected from Reddit Health-LiveI am a 16 year old male diagnosed with a fairly rare genetic disease called Ehlers-Danlos syndrome (EDS) http://www.topiama.com/r/6068/i-am-a-16-year-old-male-diagnosed-with-a-fairly I scored an 8/9 on my hyper mobility test, my sister, age 11 scored a 9/9. I've dislocated my left knee 3 times (None since the surgery!) And the right one once. I'm recovering from my second MPFL reconstruction while writing this. Ask me anything!

Hyper Mobility of arm MPFL Reconstruction of left knee 3.5 years ago MPFL Reconstruction of Right knee 1 week ago

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Mon, 22 May 2017 0:00:00 EDT
Health-LiveIamA IamA chronically ill young adult (19 years old) with TOF w/ pulmonary atresia, (yes, what Jimmy Kimmel's baby Billy has,) and several other disabilities! I've been in and out of the hospital since birth and had nine major surgeries, http://www.topiama.com/r/6051/iama-iama-chronically-ill-young-adult-19-years My short bio: including 3 open heart. Ask me anything!

EDIT: deleted the original thread due to mistakes I made, sorry! I figured people might be curious about what growing up being constantly hospitalized would be like. Especially after completing my first year of college, I realized this isn't really an experience people understand or are are comfortable with, so I figured I might as well shine a light on it! Note: I don't know a ton about my diseases from a medical perspective, more just what it feels like and what it is like spending so much of my childhood in a hospital.

My Proof: a picture of me showing off my heart surgery scar, with one of my canes: http://68.media.tumblr.com/fe077bb8f418f8637f8133a4f5e3be68/tumblr_oq4gx7uBGm1s5ytqno1_500.jpg A picture of me two years ago, age 17, recovering from my most recent open heart, (probably about a week after surgery):http://68.media.tumblr.com/bb0900ec129dd1885d980ffe9919ebbd/tumblr_nlr5fwTLsP1s5ytqno1_250.jpg picture of me with a nebulizer treatment as a toddler:http://68.media.tumblr.com/8107d7b43b5af979d4c33002f7e3a907/tumblr_nmzff9afl51s5ytqno1_250.jpg

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Thu, 18 May 2017 0:00:00 EDT
JournalistI am Susan Dominus, a staff writer at The New York Times Magazine, here to talk about my new story, "Is an Open Marriage a Happier Marriage? http://www.topiama.com/r/6045/i-am-susan-dominus-a-staff-writer-at-the-new-york Hello, Boys and Girls of Reddit!
20 years at Kaspersky Lab, and computer security still amazes me!
My business is about protecting people and organizations from cyberthreats. People often ask me “Hey Eugene, how’s business?” And I always say “Business is good, unfortunately”.
The threat landscape is evolving fast. We increasingly depend on computerized equipment and networks - which means the risks we face in cyberspace are growing as well. Plus: cybersecurity has also become a very hot political topic.
Future of cybersecurity, cyber-warfare, cyber-tactics in an increasingly politicized world, attribution, relationship between governments and cybersecurity, artificial intelligence, Russian hackers – what do you want to know?
And of course there’s our company: we’re different, and well-known, and that comes with a price. Myths start to appear, and many people don’t know what’s fact and what’s fiction. Well, I do.
The truth matters – and I’m ready to explain whatever you want to know, about cybersecurity, our company, or even myself.
You can start posting your questions right now! And from 9.00 am EST I’ll start answering them! Ask me anything! Let’s make it fun and interesting!
The answers will be all mine (although I’ve got one of our guys here with me to post the replies.)
My personal blog
PROOF

UPDATE 1:10 PM EST: Thanks for your questions folks! Especially for the tough ones. That was really interesting, but I have to go back to work now! I’ll do my best to come back later to answer questions which I couldn’t address today using my blog. Aloha!
UPDATE 2:20 PM EST OK. Answered more. Thank you all again. Have a nice day!

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Mon, 15 May 2017 0:00:00 EDT
Request[AMA Request] I. Marlene King, executive producer of Pretty Little Liars http://www.topiama.com/r/6005/ama-request-i-marlene-king-executive-producer-of Quantum computing is a completely different paradigm from classical computing, where weird quantum properties are combined with traditional boolean logic to create something entirely new. There has long been much doubt about whether it was even possible to build one large enough to solve practical problems. But when something is labeled "impossible", of course many physicists, engineers, and mathematicians eagerly respond with "Hold my beer!". QCs have an immense potential to make a global impact (for the better!) by solving some of the world's most difficult computational problems, but they would also crush the math problems underpinning much of today's internet security, presenting an unprecedented challenge to cryptography researchers to develop and standardize new quantum-resistant primitives for post-quantum internet.

We are mathematicians trained in crypto at NSA, and we worked there for over 10 years. For the past year or so we've been at a small crypto sw/hw company specializing in working on a post-quantum research effort, and we've been reading a broad spectrum of the current research. We have a few other co-workers that will likely also chime in at some point.

Our backgrounds: Rino (/u/rabinabo) is originally from Miami, FL, and of Cuban descent. He went to MIT for a Bachelor's in math, then UCSD for his PhD in math. He started at NSA with little programming experience, but he quickly learned over his 11 years there, obtaining a Master's in Computer Science at the Hopkins night school. Now he works at a small company on this post-quantum research.

John (/u/john31415926) graduated summa cum laude from the University of Pennsylvania with a B.A. in Mathematics. After graduation, he went to work for the NSA as an applied research mathematician. He spent 10 years doing cryptanalysis of things. He currently works as a consultant doing crypto development in the cable industry. His favorite editor is Emacs and favorite language is Python.

Disclaimer: We are bound by lifetime obligations, so expect very limited responses about our time at NSA unless you're willing to wait a few weeks for a response from pre-pub review (seriously, I'm joking, we don't want to go through that hassle).

PROOF

Edit to add: Thanks for all the great questions, everyone! We're both pretty beat, and besides, our boss told us to get some work done! :-) If I have a little time later, I'll try to post a few more answers.

I'm sorry we missed some of the higher ranked questions, but I'll try to post answers to most of the questions. Just know that it may take me a while to get to them. Seriously, you guys are taking a toll on my daily dosage of cat gifs.

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Fri, 28 Apr 2017 0:00:00 EDT
HealthI am 26 and fighting brain cancer. I am married to wonderful Russian immigrant with a 2 year old daughter named Alice - AMA! http://www.topiama.com/r/5998/i-am-26-and-fighting-brain-cancer-i-am-married-to I am a 26 year old father that has brain cancer. I had a tangerine-sized grade II oligoastrocytoma tumor removed 14 months ago from my right-frontal lobe. I completed one month of radiation treatment, and took the oral chemotherapy drug Temodar on a cycle for 5 months. Since January 1st, I have completed all of my treatments, and I will continue to get regular MRIs every 6 months - AMA!

PROOF: 1) Here is me about to get radiated.. http://imgur.com/gsz5XdC

2) Me with my hair mostly gone after radiated.. https://imgur.com/a/4yuk0 (at the MN Medical Cannabis dispensary LeafLine)

3) My 5K Run/Walk Sponsorship fundraiser for Brain Tumors research link: https://www.wizathon.com/walktoendbraintumors-mn/?p=display&action=participant_Page&id=39046 )))))))))))))! (PS Feel free to donate money to brain cancer research here, ::wink::)

Let's do this!

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Wed, 26 Apr 2017 0:00:00 EDT
HealthI am a 56 year old female with a BRCA-1 gene mutation. I've survived cancer 4 times and have undergone a hysterectomy and double mastectomy. AMA! http://www.topiama.com/r/5985/i-am-a-56-year-old-female-with-a-brca1-gene My name is Tamara Ammons. I was born October 31st, 1960 in Hawthorne, California. I'm the oldest of 3 siblings. I graduated from High School in 1978. I birthed my only child on January 1st, 1994.

My first job was waitressing at a diner called Polly's Pies. Then I moved on to Albertson's, where I was manager of the service deli for 17 years. Then I managed a Hallmark for 6 years. My last position was manager at Sears in the Del Amo Fashion Center. I was there for 6 years. I worked up until I was 45 years old. I am now on permanent disability.

I am a huge animal person and I love movies. My biggest passion is working in my backyard garden. I love growing pumpkins, carrots and many different flowers.

I was first diagnosed with breast cancer in 1999. Then in 2009 the breast cancer returned: At the recommendation of my physician, I had both of my breasts removed, as well as my uterus. In 2012 I developed pancreatic cancer which progressed to Stage 3. In October of 2016 I was diagnosed with lung cancer. I currently do intravenous chemo therapy bi-weekly and a daily 2,500mg regimen of Capecitabine(Xeloda).

I want to use reddit to reach out to people who have any questions about being newly diagnosed or anything at all. Here is my proof: http://i63.tinypic.com/2lsvcp2.jpg

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Sat, 22 Apr 2017 0:00:00 EDT
Request[AMA Request] Tommy Wiseau, director and star of The Room whose journey creating The Room has been made into the soon-to-be-released movie The Disaster Artist http://www.topiama.com/r/5981/ama-request-tommy-wiseau-director-and-star-of-the My 5 Questions:

  1. The Disaster Artist is based on the book by the same name by Greg Sestero, was there anything in the book about making The Room that he got wrong or misremembered?
  2. The Disaster Artist had its premiere this March at South by Southwest, what do you personally think of the movie?
  3. Do you think James Franco's portrayal of you in the movie is true to life?
  4. Were you in involved at all in the making of the The Disaster Artist's script or at all during the making of the movie?
  5. What are your future projects?

Public Contact Information: https://www.facebook.com/theroommovie/

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Sun, 16 Apr 2017 0:00:00 EDT
Health-LiveI have albinism—AmA http://www.topiama.com/r/5962/i-have-albinismama Hi Reddit!

My name is Alex, and I have albinism. I’m back for another exciting AmA!

Proof

M E T A

DNA test results

So go ahead, ask me anything.

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Sat, 15 Apr 2017 0:00:00 EDT
HealthI gave my kidney to a stranger AMA! http://www.topiama.com/r/5963/i-gave-my-kidney-to-a-stranger-ama My short bio: I was a senior about 7 weeks away from graduating when 4/16/2007 happened. I knew several people that were either killed or injured. There isn't a single week that goes by since that day when it doesn't cross my mind.

EDIT: Some additional insight so you don't have to dig through comments:

  • I was not in a classroom, and I was not shot. I was on my way to an unaffected class room.

  • I was good friends with one person that was killed, acquaintances with a few who were shot, and knew several others affected.

  • The top takeaways from the incident for me were:

  1. The media is an extremely sharpened double-edged sword. The same vehicle that generated a global outpouring of support also arm-chair quarterbacked their way into criticizing our school, and stalked students around campus trying to generate tears-on-camera. I was set to graduate with a degree in mass communication, but abondoned the media industry altogether after that incident.

  2. Virginia Tech is one of the most resilient, kindest communities I've ever known. Everyone parents asked us to "leave and come home," but not a single person I know did. We all stayed. Even the 20-or-so injured students all came back to school as soon as they could. Everyone wanted to be at school to help each other and not let something like this define who we were. One guy who was shot in the leg left his hospital bed against doctor's order on crutches, just so he could walk across stage at our departmental commencement ceremony. People gave him a full five minute standing ovation.

  3. I remember being rather hurt/upset that it can branded as "the Virginia Tech massacre." No one asked us (the students) if that was okay. I realize that's not historical labeling works, but it just always bothered me.

My Proof: http://imgur.com/a/XuFRS

EDIT 2: The intent here was to simply give folks a personal perspective on how a school/community is impacted beyond what you may recall hearing from the media. I care about my school and wanted awareness for my 32 heroes to live on a decade later. Even though I created a throw-away account and remained anonymous, there are redditors here who somehow believe I'm doing this for personal attention(?). There are certainly accounts and stories to be told of those "closer" to the incident itself, but I never claimed to be one of those accounts, so I'm having trouble reconciling some of the outrage and hatred in the comments.

With that, I'm going to stop responding to things now. My sincerest apologies if any one found this exploitative or disrespectful, it certainly was never the intent.

neVer forgeT.

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Wed, 12 Apr 2017 0:00:00 EDT
Request[AMA Request] The person who runs Wendy's' Twitter Account. http://www.topiama.com/r/5966/ama-request-the-person-who-runs-wendys-twitter My short bio: I was a senior about 7 weeks away from graduating when 4/16/2007 happened. I knew several people that were either killed or injured. There isn't a single week that goes by since that day when it doesn't cross my mind.

EDIT: Some additional insight so you don't have to dig through comments:

  • I was not in a classroom, and I was not shot. I was on my way to an unaffected class room.

  • I was good friends with one person that was killed, acquaintances with a few who were shot, and knew several others affected.

  • The top takeaways from the incident for me were:

  1. The media is an extremely sharpened double-edged sword. The same vehicle that generated a global outpouring of support also arm-chair quarterbacked their way into criticizing our school, and stalked students around campus trying to generate tears-on-camera. I was set to graduate with a degree in mass communication, but abondoned the media industry altogether after that incident.

  2. Virginia Tech is one of the most resilient, kindest communities I've ever known. Everyone parents asked us to "leave and come home," but not a single person I know did. We all stayed. Even the 20-or-so injured students all came back to school as soon as they could. Everyone wanted to be at school to help each other and not let something like this define who we were. One guy who was shot in the leg left his hospital bed against doctor's order on crutches, just so he could walk across stage at our departmental commencement ceremony. People gave him a full five minute standing ovation.

  3. I remember being rather hurt/upset that it can branded as "the Virginia Tech massacre." No one asked us (the students) if that was okay. I realize that's not historical labeling works, but it just always bothered me.

My Proof: http://imgur.com/a/XuFRS

EDIT 2: The intent here was to simply give folks a personal perspective on how a school/community is impacted beyond what you may recall hearing from the media. I care about my school and wanted awareness for my 32 heroes to live on a decade later. Even though I created a throw-away account and remained anonymous, there are redditors here who somehow believe I'm doing this for personal attention(?). There are certainly accounts and stories to be told of those "closer" to the incident itself, but I never claimed to be one of those accounts, so I'm having trouble reconciling some of the outrage and hatred in the comments.

With that, I'm going to stop responding to things now. My sincerest apologies if any one found this exploitative or disrespectful, it certainly was never the intent.

neVer forgeT.

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Tue, 11 Apr 2017 0:00:00 EDT
HealthIamA guy born without my left hand http://www.topiama.com/r/5927/iama-guy-born-without-my-left-hand I'm a 14 y/o guy born with symbrachydactyly on my left, meaning I'm missing all my fingers and instead have little "nubbins" without any bone in them. I have about 7cm left of my hand from the wrist down. If you want to know how I do something just ask.

My Proof: http://imgur.com/AMbS1nO 2nd Proof: http://imgur.com/JON8d4M (Took picture with computer, it's actually my left hand)

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Mon, 27 Mar 2017 0:00:00 EDT
Health-LiveI am in the hospital with my wife of 10 years who has just gotten her gender reassignment surgery. AMA! http://www.topiama.com/r/5906/i-am-in-the-hospital-with-my-wife-of-10-years-who I am a federal budget analyst. My focus is macro fiscal policy, including the main drivers of spending and revenue, deficits, and debt. I am happy to talk about the Trump skinny budget, and I am happy to talk about the American Health Care Act, though I'm not a health policy expert. The opinions expressed here are my own and do not reflect those of my place of employment.

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Wed, 22 Mar 2017 0:00:00 EDT
HealthIamA 31 year old with Tourettes syndrome AMA! http://www.topiama.com/r/5904/iama-31-year-old-with-tourettes-syndrome-ama My short bio: I have had TS all my life, but it became severe in the last few years. I studied Physics at university and work for a living (delivering pizza... everyone loves pizza). I welcome your questions about my condition.

My Proof: https://www.youtube.com/watch?v=V5WwEhR43aQ

updated proof; https://www.youtube.com/watch?v=emEhQlouZx8&feature=youtu.be

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Mon, 20 Mar 2017 0:00:00 EDT
HealthIamA 23 year old male awaiting liver transplantation in South Africa. They told me the waiting period was anywhere between 2 days and 20 years. AMA http://www.topiama.com/r/5870/iama-23-year-old-male-awaiting-liver I was diagnosed with Primary Sclerosing Cholangitis (PSC is an auto-immune disorder that effects the liver) on my 21st birthday, and I have been living with Ulcerative Colitis (also an auto-immune disease) since I was 15. I am a patient at a South African public hospital, partly because I don't have enough money to go to a private hospital (I have to go through numerous tests/scans/procedures etc. that are too expensive for my current bank account) and also because the liver doctors are better. I take 19 pills a day, including vitamin supplements, and I smoke weed. What else would you like to know?

My Proof: http://imgur.com/a/gjfxI

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Thu, 09 Mar 2017 0:00:00 EDT
HealthIamA 22-Year-Old Bedwetter That Wears Diapers. AMA! http://www.topiama.com/r/5859/iama-22yearold-bedwetter-that-wears-diapers-ama Greetings everyone.

Let me be straight with you right off the bat, this is not my first rodeo. But 8 months is a long time and a lot of stuff has happened in Sweden since. (Also you guys have an orange president now? Do you color code your leaders?)

I also figured since certain statements have been made about my country by a certain someone, it might be a good idea to have someone on the inside give his two cents on what is actually going down over here.

I have the whole day free and will gladly answer as many questions as possible.

EDIT: Haha, 76% upvoted? I didn't know my job was so controversial ;)

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Mon, 27 Feb 2017 0:00:00 EDT